Jayden Clark’s skin as a baby was so fragile at one point it caused a life threatening infection. Even small brushes of his skin could cause it to breakdown. Now 19, Jayden is a thrill seeker! Learn more about his extensive medical journey, his passions and the special message he has for others with ectodermal dysplasias who find it hard to smile.
Remembering Mary K. Richter With Great Love
Our hearts are heavy. The matriarch of our National Foundation for Ectodermal Dysplasias (NFED) family, Mary K. Richter recently died. We know this has come as a shock for our community. Amidst our profound sadness, join us as we remember this incredible woman.
Incredibly Grateful for So Many Things This Year
This week, we celebrate Thanksgiving. On my daily walks, I’ve been thinking about this year and how much we truly have to be grateful for as an ectodermal dysplasias community. Having gratitude can really shift our perspective on life and help us feel hopeful. I know it does for me. Join me as I look back on 2022 and just a few of the wonderful things that took place at the National Foundation for Ectodermal Dysplasias (NFED).
40 Years of Achievement
2021 Annual Impact Report In 1981, a new organization was formed with a simple but incredibly important purpose—to help all those impacted by ectodermal dysplasias. Now, forty years later, the National Foundation for Ectodermal Dysplasias (NFED) is recognized as the global leader on all things ectodermal dysplasia. In 2021, we provided support to nearly 10,000…
Monthly Gifts Are the Life Blood of a Nonprofit
Monthly donations accomplish so much, but not just for the National Foundation for Ectodermal Dysplasias (NFED). Consider the power and impact of a monthly giving commitment—for us, for you, and for the NFED community. Monthly donors provide the NFED with sustainability, a reliable source of monthly support, and a stronger relationship with you. Find out how you can become a Smile Maker today!
Celebrating 40 Years with Our Family
The 2022 NFED Family Conferece was a great success. Every year, the NFED invites the families it serves to convene at the conference to learn and most importantly, to connect. We laughed, we cried, we danced, and we can’t wait to see you next year!
40 Years of Support
Andrew James’ first year of life was traumatic, requiring many ER visits for unknown reasons.
When his parents finally had a reason for their baby boy’s health challenges, ectodermal dysplasia, they turned to the NFED for support.
The NFED is proud to have supported the James family and other families like them for 40 years!
Got Change? Help Us Celebrate 40 Years of Impact!
The NFED has ambitious goals for its 40th anniversary celebration year. Becoming a 40th anniversary sponsor will ensure we reach our goals and create more impact.